ECC SINDROMEA - JULEN - (ASPANIF)

Julen Athleticen zale amorratua da, eta ahal duen guztietan joaten da partidetara.

Ezpain arrailduarekin jaio zen, eta 14 urterekin 28 ebakuntza baino gehiago egin dizkiote.

Amak dio ez duela sindrome hau duen inor ezagutzen, nahiz eta ASPANIF elkarteko kide diren (Ezpain-ahosabaiko arraildura duten haurren familien elkartea).

Julen Eduren bidez ezagutu genuen, [@larutadelratoncitoperez](https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.instagram.com%2F_u%2Flarutadelratoncitoperez%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR1nHKzxITILEN3t1_7j69uyVeDPkRjR1oWnCH2Z3IscbC5GKFzfDr9XVas_aem_wuf0PYnd83nV_sgGNQEa7g&h=AT1vO-AN3ZLGzHRYyprCV-3YtL0eRUAL0lPcfAv2NN8ghxutN9nkiJZZKgZswRJsKjWcHxKlLFb2MH1LfZ6veFpPrDFJNvb7xJWCbu6IAcMp1hAgxcrpigQdcPMTv5RRUujC&__tn__=-UK-y-R&c[0]=AT0C_9jRju3Xp5RP5raBhZkPLoofTkspoTj5cR3UsoKdWe-3HvEbEGz9cmHfr2vvJFtDOTn2IQZ4DyQBCDj-CUU9VABKn1R__pbWJpTEJPS49bwxAkBuEuX7njJRipM70Z5wSiQ3VjwsfcWLHtCx7qSje_Rrf1rdeUzcdwhsYVoXXwMfwtGESSUpXmgxDtS5K98fUyNryD0igbRxo0eNkbswa7UUZ-oQKYmQgmsIxUV-zPGEbXkFOPiBwVqSWQfM2xoFtDfvnIS2oE1-hzI) ekimenaren sortzailearen bidez; gaixotasun arraroen gaian izugarri inplikatuta dagoen mutila da.

[@raquel_sanz_boada](https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.instagram.com%2F_u%2Fraquel_sanz_boada%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR3oySK0t5vRXTsx5_wweye9x83jUu6XamLDbsEtdyXcBrnOwz-SjLuAuRg_aem_0H5iIqad_P59NYg9Me3RFw&h=AT3JELbtFJzVkwJNUFCqBpcq_VsROGPyolq932K08t1mb0rfSA-yevHiHLUSFCvp4bMjTMzAJLX673rsz_WRsonO6btn7giTS7Hsez1zUcwgSKVFT7EfDg5eR9-HYP0M6fKR&__tn__=-UK-y-R&c[0]=AT0C_9jRju3Xp5RP5raBhZkPLoofTkspoTj5cR3UsoKdWe-3HvEbEGz9cmHfr2vvJFtDOTn2IQZ4DyQBCDj-CUU9VABKn1R__pbWJpTEJPS49bwxAkBuEuX7njJRipM70Z5wSiQ3VjwsfcWLHtCx7qSje_Rrf1rdeUzcdwhsYVoXXwMfwtGESSUpXmgxDtS5K98fUyNryD0igbRxo0eNkbswa7UUZ-oQKYmQgmsIxUV-zPGEbXkFOPiBwVqSWQfM2xoFtDfvnIS2oE1-hzI)

ASPANIF (Ezpain-ahosabaiko arraildura duten haurren familien elkartea)

[@rarediseasedayofficial](https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.instagram.com%2F_u%2Frarediseasedayofficial%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR1AaEz6hF8zg3dJyka5aroM-TtjXLm791GnK5ZY4kpXgPI66ODKAo4UN-A_aem_58qKiYzwcXxytcyWV_-Qfw&h=AT0QJLMqanqQmy39if9vcNPYC06n7oZdOutvb4DxpGSlQsFMPaLFAkjizvlfMwqKoUahno0vQTTebEV9A3wpwgoUT94RK2CqiK-Mfu0gGvE7N8-pwveIjMWFEIMZWCxkc6xo&__tn__=-UK-y-R&c[0]=AT0C_9jRju3Xp5RP5raBhZkPLoofTkspoTj5cR3UsoKdWe-3HvEbEGz9cmHfr2vvJFtDOTn2IQZ4DyQBCDj-CUU9VABKn1R__pbWJpTEJPS49bwxAkBuEuX7njJRipM70Z5wSiQ3VjwsfcWLHtCx7qSje_Rrf1rdeUzcdwhsYVoXXwMfwtGESSUpXmgxDtS5K98fUyNryD0igbRxo0eNkbswa7UUZ-oQKYmQgmsIxUV-zPGEbXkFOPiBwVqSWQfM2xoFtDfvnIS2oE1-hzI)

@feder

[@larutadelratoncitoperez](https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.instagram.com%2F_u%2Flarutadelratoncitoperez%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR1cv195Y0X8gia7utbjmsQx7tRZAym6EGlJCv6Km3NxQTnuGsoiF8nfUTE_aem_lK56F3CxDsX-1VC1nZB6Qw&h=AT1vO-AN3ZLGzHRYyprCV-3YtL0eRUAL0lPcfAv2NN8ghxutN9nkiJZZKgZswRJsKjWcHxKlLFb2MH1LfZ6veFpPrDFJNvb7xJWCbu6IAcMp1hAgxcrpigQdcPMTv5RRUujC&__tn__=-UK-y-R&c[0]=AT0C_9jRju3Xp5RP5raBhZkPLoofTkspoTj5cR3UsoKdWe-3HvEbEGz9cmHfr2vvJFtDOTn2IQZ4DyQBCDj-CUU9VABKn1R__pbWJpTEJPS49bwxAkBuEuX7njJRipM70Z5wSiQ3VjwsfcWLHtCx7qSje_Rrf1rdeUzcdwhsYVoXXwMfwtGESSUpXmgxDtS5K98fUyNryD0igbRxo0eNkbswa7UUZ-oQKYmQgmsIxUV-zPGEbXkFOPiBwVqSWQfM2xoFtDfvnIS2oE1-hzI)

#vamosahacervisibleloinvisible

#enfermedadesrarasperonoinvibles

ASPANIF

← Berri guztiak